this morning, i woke up to the dogs fighting on my bed just like any other morning. I got up, peaked in at aiden(( seen that jeff was playing with him)) and headed downstairs to catch some breakfast before we brought him and all his stuff down. No sooner do I get downstairs before Jeff starts screaming, Sarah.. get up here aidens purple.. it took me only 2 seconds to get to his room and he was going purple fast.. his body was limp, he was not looking at me or concious of what i was saying. I tried suctioning him and nothing was working. Jeff was on the phone with the rescue squad while I decided to start CPR. His heart rate, and oxygen had dropped to zero. I honestly thought we lost him. Finally, after a few minutes of CPR, he started coming back up. He started breathing normally, and his heart rate went back up to the 150's. By that time, the ambulence was there. I decided this was the best time to get him to the hospital. He has been sick for the past few weeks, and I thought it would be the safest way to get him there. So Aiden and I climbed in the ambulence, strapped in and headed for St. V's. We got here and he still wasn't normal. He acted like he was very aggravated and he didn't want anyone bothering him. All the doctors and nurses piled in the room. They wanted the story and all his medical back ground. Aiden was not happy. He was very tired and wanted to take his nap. The nurses began suctioning him. A little while after that, everything started to settle down. Aiden began to take his nap, and Jeff and Melanie showed up. They brought all his machines from home, so we decided to put his bipap on. Everything was going pretty good..
Soo Melanie and I decided to grab some lunch to bring back to our room. We were only gone a few minutes, but when we got back, jeff and the nurse told us that aiden stopped breathing again. His heart rate had also dropped to. By that point, I started crying. I looked into his eyes, which to me.. were not normal. They were not MY normal healthy, happy aiden. He was looking right threw me. I tried to hold it back, but couldn't help but to cry. I felt like I was losing my baby! I began going through all the horrible things that had been happening, and thought aidens body was telling me it was ready to give up. I couldn't stop crying.. A few minutes later, aiden fell asleep. Jeff and Melanie finally got me all settled down.
A few minutes later, a nurse came in, she was ready to take us up to the PICU. They began getting all his machines ready to go upstairs. With all the russeling around, aiden woke up. He woke up his normal, happy baby. He was EVEN SMILING!! I was so happy.. it brought back all my joy and hope. Hope that he would be okay and make it another day. Thats all we really pray for, just oneee moree day.. everynight.. just one more dayy..
We got to the picu and they began doing all there tests and got us all settled in. I even went back home for the rest of aidens "stuff". He loves alllll his "stuff" and I just didn't think I'd be the same if he didn't have it all. When I got back to the hospital, the doctor told us aiden's right top lung was collapsed. He had a lot of mucus built up there, and just couldn't get it out. They are going to get him some meds to help thin it out, and hopefully make him feel better. I think he is already doing better. He has been talking and even trying to hold his toys again. I hope tomorrow, is a better day. I know we won't go home tomorrow, but I hope that we got home soon.. and I pray that we get.. onee more day....
Sunday, February 28, 2010
Wednesday, February 17, 2010
Aiden's First SMA Checkup
Monday, Jeff, Aiden, And I traveled to Cincinatti again for Aidens first sma check up, since we've left the hospital. The doctors, nurses, and people we have never met, we so happy to see him. They kept telling Jeff and I how we were doing such an amazing job with Aiden, and how no matter what happens, most sma parents rise to the occasion.
His appointment was yesterday, Tuesday, and boy did he have a big day!! He went to see the lung doctor, all the doctors and nurses were gushing over how fat he has gotten. They did a quick chest xray, then told us everything looked wonderful!
Next, we went up to nutrition. They were very surprised at how fat he had gotten as well.. Everyone kept complimenting on his "rubberband wrists as my aunt calls them", and the fat feet he has. They decided to back his food off a little bit because all the fat is making it hard for Aiden to breath.
Then, he seen Physical therapy/and the Neurologist. The neurologist was so happy to see him as well. She had stopped up to the TCC everyday to see him when he was in the hospital for a month! She never really touched him, because she didn't want to spread germs from other children. She soon became Aidens favorite doctor. He always knew she would come to see him everyday, and that she would not hurt/touch him. Jeff and I had a long talk with her about how stretches and therapy is very important to aidens health, and that he should be doing both at home. Sadly, Aiden has to get let braces, to help losen his muscules out more. The good thing is, he only has to wear them at night!
After we seen neurology, she wanted a few blood tests done, and an xray to make sure aidens hips were still in the right place. He sits like a frog a lot, and that can make the hips come out of socket.
Everything went very well! We go back for another check up in 3 months. Hopefully Aiden will not get sick between now and then. The doctors said to always stay in contact! If he is ever sick, they need to know. Then they commented on how I was very good at that, and called everytime I suspected something was wrong, or was going to be wrong. It felt great knowing our cautious parenting was helping so much.
So Jeff, Aiden, and I got in the car to come back home. It is a 3 hour drive, and Aiden had not napped all day! The doctors let him play, and stretch and watch tv. He was so busy, he did not have to time to nap! So, we got to about Lima, and called it quits for the night. Aiden was cranky, it was late, and it was snowing pretty bad. Today, we are going to get up pretty early and head back home!
I want everyone to know how greatful we are to have such a great support system! You guys help us feel like anything is possible!
His appointment was yesterday, Tuesday, and boy did he have a big day!! He went to see the lung doctor, all the doctors and nurses were gushing over how fat he has gotten. They did a quick chest xray, then told us everything looked wonderful!
Next, we went up to nutrition. They were very surprised at how fat he had gotten as well.. Everyone kept complimenting on his "rubberband wrists as my aunt calls them", and the fat feet he has. They decided to back his food off a little bit because all the fat is making it hard for Aiden to breath.
Then, he seen Physical therapy/and the Neurologist. The neurologist was so happy to see him as well. She had stopped up to the TCC everyday to see him when he was in the hospital for a month! She never really touched him, because she didn't want to spread germs from other children. She soon became Aidens favorite doctor. He always knew she would come to see him everyday, and that she would not hurt/touch him. Jeff and I had a long talk with her about how stretches and therapy is very important to aidens health, and that he should be doing both at home. Sadly, Aiden has to get let braces, to help losen his muscules out more. The good thing is, he only has to wear them at night!
After we seen neurology, she wanted a few blood tests done, and an xray to make sure aidens hips were still in the right place. He sits like a frog a lot, and that can make the hips come out of socket.
Everything went very well! We go back for another check up in 3 months. Hopefully Aiden will not get sick between now and then. The doctors said to always stay in contact! If he is ever sick, they need to know. Then they commented on how I was very good at that, and called everytime I suspected something was wrong, or was going to be wrong. It felt great knowing our cautious parenting was helping so much.
So Jeff, Aiden, and I got in the car to come back home. It is a 3 hour drive, and Aiden had not napped all day! The doctors let him play, and stretch and watch tv. He was so busy, he did not have to time to nap! So, we got to about Lima, and called it quits for the night. Aiden was cranky, it was late, and it was snowing pretty bad. Today, we are going to get up pretty early and head back home!
I want everyone to know how greatful we are to have such a great support system! You guys help us feel like anything is possible!
Monday, February 1, 2010
Happy Birthday Aiden
YAYYY!!! Today is Aiden's First birthday..the day the doctors in Toledo said he would not make it to. It feels good seeing him today and everyday. He beat the odds. Miracles happen, and one just happened to us. It is definately alot of work taking care of him, but it makes me so much more thankful for every minute I get to spend with him. He is so strong, happy, innocent, and honestly the best baby ever. Despite all the crap he goes through, he wakes up with a smile on his face ((almost everyday)), talkin about dada, and is just ready for whatever life throws at him. When he has to get his treatments, suctioned, or bipap, he doesn't fight it or cry, he just takes everything he has to to make it to another day.
Yesterday, we threw aiden a birthday party! I just wanted to say THANK YOU to everyone who was part of that!! He was soo lucky to have soo much loving family, who would be there with him threw anything. Its been a very good year, Iam soo thankful for everything and everyone we have in our lives!!! :)
Yesterday, we threw aiden a birthday party! I just wanted to say THANK YOU to everyone who was part of that!! He was soo lucky to have soo much loving family, who would be there with him threw anything. Its been a very good year, Iam soo thankful for everything and everyone we have in our lives!!! :)
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